I would not have chosen A.L.S. at the Pick Your Disease store, but there are worse things that can happen and worse ways for a life to end. The very fact that it was happening to me and not to my family was itself a relief. Navigating one’s own pain or fear is much easier than navigating a loved one’s.
By last spring, the diagnosis became hard to deny, but as a retired grief therapist I knew not to spend more than a few minutes with “No!” In that regard, as in many others, Buddhists have it exactly right: Getting enmeshed in a resisting “no” and in the unanswerable “why me?” is a recipe for self-inflicted suffering. I knew to focus instead on “what now”? What do I need to address — with myself and with others? How do I respond to the reality of a terminal illness? (A year later, “no” still makes infrequent appearances, but it remains unfed so the visits are brief.)